My.
c2_Castlégar News october 11, 1989

DO YOU ASK YOURSELF
THESE QUESTIONS?

Who should be my Executor?

What are an Executor's duties &
responsibilities?

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Are there advantages in setting up
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FOR ANSWERS
TO THESE QUESTIONS

ATT
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1810-8th Avenue, Castlegar

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Hemophilia

continued from page C1

more susceptible to a number of deadly illnesses, pa.
ticularly cancer and pneumocystis carinii, a form of
pneumonia

That ultra-weakened state is what's known as AIDS,
acquired immune deficiency syndrome,

Hemophiliacs with HIV ALDS are afraid of rejection,
ifnot violence, from people who think you can get AIDS
just be sitting next to someone with HIV

Last spring; The Gazette asked the Canadian
Hemophilia Society for the names of people who would be
willing to talk about acquiring HIV through Factor VIII
The society couldn't — or wouldn't — locate anyone.

Roger Roy is tired of waiting for the government to act
on the society’s demands. He decided it was time to speak
out, hoping his story would lead to public pressure on the
goverriment to compensate hemophiliacs with HIV AIDS,
and their families.

The society apparently decided it was time for some
pressure, too; they provided a reporter with Roy’s name

Among other things, Roy says:
for my loss of joie de vivre.”

Roy found out in 1986 ‘*by letter from the hospital’?
that he was HIV-positive.

“They said I had come in contact with HIV, but as a
hemophiliac I am in contact with so many viruses, | was
told it was no worse than any other. You devélop an
tibodies, it’s OK. I didn’t think I was in danger of dying.”

He said it was never made clear to him and his wife,
Nicole Desrosiers, that the virus could spread between

“IL want compensation

Nicole became pregnant again the summer of 1988:

**When we told them at the hospital, they got very UP
set and said we shouldn't have done it,” said Roy, since
both Desrosiers and the infant could have contracted HIV

Desrosiers miscarried at nine weeks; she has since
tested negative for HIV

‘ARE YOU AFRAID?”

While he and Desrosiers now take ail precautions to
prevent her from becoming infected or pregnant,
‘sometimes now when I go to her sensg a coldness and I
ask her if she is afraid of me,” Roy said

“Pecan make you feel like a criminal. This has brought
us closer as a family, but in some ways made up farther
‘apart.’”

Roy walks stiff-legged, his knees practically locked in
place by arthritis, When blood collects repeatedly in the
joints of hemophiliacs, they wind up with arthritis

Hemophiliacs are often economically disadvantaged

They rarely qualify for life insurance. Often the person
with HIV quits work to avoid the stress which can worsen
his condition. Once he gets reall)\sick, his spouse or a
parent may quit a job to stayat home take care of him

Until Factor VII-came along, there wasn’t much joy
in Roy’s life, or those ac hemophiliac brothers. The
wonder product mean@Mé.could stay out of hospital even
when his fragile organs and tissues began to hemorrhage

“If you are a severe hemophiliac, you can hemorrhage
just be lying in bed all night,” said Roy

Regular injections of Factor
hemorraghing.

Even better, Roy began to enjoy’ sports and school

VIII prevent such

“4
October 11, 1989 Castlégar News c3

Cure

continued from page Cl
says a vaccine is a possibility in a few years, although he
cautions that s might have to a im-
prove it to keep pace with changes in the virus. Like the
flu virus, which mutates every few years, HIV seems to
be a changeable demon, complicating the process of
finding a vaccine.

There is money to be made, too, in less exotic
products, Figures from the United States showed that
condom sales jumped 20 per cent between 1986 and 1987
after the surgeon general recommended their use for the
prevention of AIDS.

Most experts in the AIDS field say education is the
main method of holding down the spread of AIDS.
They want to hammer home the. message that sex
without condoms, promiscuity and the use of dirty in-
travenous needles are very dangerous. But plans for ex-
plicit television commercials and graphic

posters

outlining the dangers of AIDS have drawn fire from
somé groups.

Some people say promoting the use of condoms is
really or sexual
experimentation among young people. Some parents

d hick hools.

In Europe, ads, commercials and posters are ex-
plicit, but Canadian efforts — with few exceptions —
have tended to be coy, diluting the message.

That timidness may be fatal,

Joe Rose was a 17-year-old Montreal teenager with
AIDS when he was stabbed to death by a group of gay:
baiting youths ina tussle outside a subway station

He had been suffering from pneumonias, cancers
and nerve ailments

“*] really envy kids today,’” the scrawny, haggard
teenager said just before his death. “They hear and talk
about AIDS all the time. They’re better off than I was.””

Help offered to
children of elderly

By JUDYCREIGHTON
‘The Canadian Press

Julia has already used up her office
sick days and holidays this year caring
for her elderly mother who suffered a
stroke last Christmas, And Julia is
frantic.

When she’s not worming about her
sacthes’s: health; Me's. on: the
telephone trying to find home care or
an agency where she can leave her
mother each day so she can go to work

Julia is a fictional person, but her
case is typical of the problems many
working people are coming up against

Family pressures are one of the
major reasons for employee turnover
and absenteeism, says Mark Frankel, a
Toronto psychologist who has

History

continued from page C1 every major city

be caught only by the exchange of
blood or semen.
People

with AIDS still encounter

discrimination and fear. Some have

The hospices are sanctuaries for the
doomed, quiet places where those in
the final stages of the disease can find
solace and a hand to hold on thier way

like lost income are included.
Has AIDS changed social mores?
Warnings about AIDS often fall on
deaf ears. Surveys show that many
people, especially young people, still

man and woman. While they had been ‘*prudent’” in their
sexual relations starting in 1986, ‘‘we decided to take the

risk”” in having another hcild

up within 24 hours.

without worrying that a slight tap would bring on bleeding
If he did hemorrhage, a shot of Factor VIII would clear it

Recommend massage

TORONTO (CP) The new
mother grasps her baby son's tiny legs
and gently pumps them — drawing one
knee towards and then away from his
abdomen and then repeating the
motion with the other leg

The bald, wrinkled newborn lets dut
a few squeals, but the cries die down as
mom continues tomove his legs

Christine Sutherland, a massage:
therapy expert, says it’s all part of get

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ting parents in touch with their babies
“It’s common for a child to cry —
they don’t know you give a good
massage,”’ says Sutherland, who con
ducted a workshop at the recent con
vention in Toronto of the American
Massage Therapy Association
Sutherland teaches massage
techniques every summer to parents
and professionals across Canada. The
techniques cover normal and special
needs babies — premature babies and
those with physical handicaps and
medical problems such as
fibrosis and multiple schlerosis.
“Through touch, babies become
aware of their bodies and their
movements and — in contrast — what
is not a part Of their body, which
results in a sense of their in
dividuality,” says Sutherland. “A sen:
se of separateness can be frightening
but through regular “inassage and
holding and handling with love, a baby

cystic

will know that she is not alone.”

She adds that touching develops
emotional bonds between the child and
its parents.

Massaging regularly
preferably 15 minutes a day — alsd has
physiological benefits, Sutherland
says. These include increasing cir
culation and energy levels, promoting
relaxation, aiding the digestive and
respiratory systems |and relieving
muscle tension

For-instance, she says, pumping a
baby’s legs helps relieve constipation
and trapped gas, common problems
among babies that cause colic
cramping in the abdomen.

In babies with cystic fibrosis a
disease that causes secretion of a thick,
sticky mucous that clogs airways and
results in severe digestive difficulties —

babies

severe

massaging the breast area can help get
the congestion out of their systems,
Sutherland says.

Protein may
point out tumor

BOSTON (REUTER) — A protein
made by the sex organs and released in
to the blood may tell doctors when a
tumor is present in an ovary, resear
chers report

In a study of six patients suffering
froma special form of cancer known as
granulosa-cell tumors, the researchers
found that the higher the amount of
the protein inhibin, the larger the
tumor grew

If further work confirms the fin.
ding, they said, it could tell doctors
when an ovary tumor has not been
completely removed by
what

surgery and

anti-cancer drugs need to be

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with beautiful views.

22, 1989.)

lost their jobs, others find themselves
ostracized by family and friends.

Health Minister Perrin Beatty has
noted that surveys show most people
don't want to be exposed to people
with AIDS. One in five Canadians
believes children with AIDS should not
be allowed in school.

‘Instead of receiving understanding
and respect for their human ‘dignity,
people with AIDS are faced with losing
their families and friends and having
their homes and their jobs taken away
from them,"’ he told the Commons
earlier this year

The federal government's response
has been a non
people with
AIDS or those who carry the virus. A
few companies have come up with
similar rules but for most firms and
most case-by-case

decision. Some people lose their jobs,

policy of

discrimination against

workers it's a

others stay on as long as their health
permits

Not everyone is petrified by AIDS.
Doctors, nurses and other medical per
sonnel once worried about catching
AIDS through contact with blood and
body fluids

However

during treatment
cases of doctors or nurses
AIDS in their work have

been extremely rare and many of the

contracti

fears have disipated

Changing attitudes are reflected in
the opening of hospices for terminal
AIDS patients — two in Montreal and
another in in the
growth of support groups for AIDS in

Toronto and

into darkness
COMMUNITY UNITES

In Vancouver, the sizable
homosexual community has united
with other activists to help counter
AIDS. There are store-front-clinies
handing out free syringes to drug
users. There are safe-sex posters in bars
and information leaflets pasted to
utility poles.

In Wirmipeg, AIDS has a lower
profile, but there are still volunteer
counsellors to support people with
AIDS and offer information.

The AIDS quilt, a giant patchwork
of memorials to the fallen, has been
displayed in several Canadian cities. Its
panels, sewn by relatives and friends of
victims, are a stark reminder of the
human tragedy.

Celine Dubord, a member of a Mon-
treal AIDS support group, sewed a
quilt panel in memory of people she
met through the group. Her work
shows the Little Prince, Antoine Saint-
Exupery’s famous character, standing
on a black background with white bir-
ds flying around him.

though they've left
lly, I have kept memories of
them," Dubord said

The costs add to the AIDS tragedy.
Insurance companies say the disease
and the premature deaths it causes will
hit their industry hard.

Health-care costs for each Canadian
AIDS patient have been estimated at
$82,500 a year. Total costs are certain
to run into the billions when factors

indulge in unsafe sex. They have
multiple partners, they don’t use con
doms, they have anal intercourse.

A group of students in a Winnipeg
bar shrugged off concerns about
AIDS. ‘‘It’s mostly homosexuals, isn’t
it?”” said one dapper young man as he
tossed back a drink. ‘Well, I'm not
h ual.’ His
whooped in agreement

BLASE OUTLOOK

Friday-night partyers in Vancouver
were equally blase. ‘*I guess it should
be something to think abou
woman said doubtfully as she listened
toa pounding beat in a disco.

About 157,000 AIDS cases have
been officially reported around the
world. The World health Organization
says the actual total could be° far
higher, but no one knows.

While AIDS spreads, hundreds of
researchers are working in. different
countries to find a cure, or at least an
effective treatment for the disease.

What's happening here?

Canada’s efforts to deal with AIDS
have been criticized by lobby groups
and some researchers.

“The bottom line is that the
program’s a mess,"’ says Dr. Norbert
Gilmore, the outspoken physician who
resigned earlier this year as chairman
of the national advisory committee on
AIDS,

Gilmore says there's little co
ordination in efforts to educate
people, develop treatments and seek a
vaccine.

ped a computerized service to
help people find the care their parents
need.

“And these pressures will increase as
the general population grows older and
as more women enter the workforce,"
says Frankel, president of Microchip
Human Services Inc

Several Canadian corporations that
help their employees deal with these
problems are hooking up to Frankel’s
system.

The system, called Taking Care, was
originally set up to meet the increasing
demands by working parents for child
care information

OFFERS GUIDANCE

Itnow gives employees guidance and
access to information about services to
care for children and the elderly, says
Frankel

The service can be easily delivered to
computers in the workplace for use by
employees. In less than a minute,
based on a series of questions, the
program will produce a list of services
to meet the employee’s needs.

“This is not only an information
system, but an understanding
system,” says Frankel. “It. helps
people understand alternatives and
gives quality help to find the services
which are tailored to the particular
needs of the elderly.”*

He says he got the idea for the
system after-counselling families at
Delicrest Children’s Centre in Toron-
to. Many parents suffered stress trying
to juggle careers with family respon-
sibilities, he explains.

After the child-care system was set
up, Frankel asked employees at
Manufacturers Life Insurance Com-
pany and Imperial Oil about dif
ficulties they were having caring for
elderly relatives

“Out of these came a definite desire
for information on services in the
community for the elderly,”” he says

Frankel's system provides com
prehensive information — whether it
be on finding home care, acertain type
of nursirig home, or a chronic-care
facility that allows smoking

At-Manufacturers Life, the on

line computer program is available to
employees at company offices in
.24hours
a day, seven days a week, says Cherie
Wright, staff services co-ordinator

She says it requires no computer
skills and doesn’t tie up stafftime. And
employees can use it during non-work
times, day or night

Toronto and Waterloo, Ont

“The service is constantly updated
with new information for users,” says
Frankel. *‘All information is provided
by professional specialists in elder

care.""

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